02 / THE PROBLEM

The spelling is right.
The technology says otherwise.

Hidradenitis suppurativa is the correct name of a recognized medical condition. Yet some digital tools may flag the term as misspelled or suggest a different word. That mismatch can interrupt communication and make an already misunderstood condition harder to talk about.

THE TERM ENTERED

Correct medical language

hidradenitis suppurativa

The condition name is spelled correctly.

WHAT A TOOL MAY SHOW

Flagged or changed

hidradenitis suppurativa

A spelling alert or replacement suggestion can imply the word itself is wrong.

Illustration of the issue being documented. Behavior varies by device, app, keyboard, language settings, and software version.

It interrupts communication

People may need to pause, correct, or explain a term that should be recognized.

It can obscure the condition

Search, captions, and messages can carry the wrong wording when a tool changes the name.

It sends the wrong signal

Repeatedly marking a correct medical term as an error can reinforce the sense that HS is unfamiliar or not real.

02A / OUR APPROACH

How we’re finding the issue
and acting on it.

We are documenting how digital platforms handle “hidradenitis suppurativa.” We use consistent tests to confirm what happens, share verified results with platform teams, and track responses and next steps.

01OUR TESTING

We compare the same phrases across platforms.

We test five set phrases, from the full condition name to everyday wording, to see whether each is recognized, flagged, suggested for replacement, or automatically changed.

02OUR RECORD

We document each result and its setup.

For each test, we save a screenshot and note the device, operating system, app or keyboard version, language settings, and date. That context keeps each finding clear and repeatable.

03OUR RESPONSE

We use findings to request change.

We combine documented results with community experiences, share them with platform teams, and track requests and responses through the project.